To the Vampires Who Cared...

Saturday was a truly monumental day for me. I was a the homeschooling fair that (by default) I was in charge of. One of the committee members arranged to have the American Red Cross come with their bus for a blood drive. As I went to welcome the blood (aka: vampire) crew, I told the woman in charge that I really wanted to donate, but... and I let her know about the heart challenge last year. I expressed that I did not know if I would "pass" the test to donate. She encouraged me to come and see what we could figure out.

I have not been able to donate for over 5 years, because of my heart. In fact, I remember the last time I attempted to. It was at our church building in Nampa, ID. I went through the list of questions and sadly, things were bad enough with my heart that they had to excuse me from giving my blood away- blood that is a rare type and always in need. This time, though, I was determined to pass the test by sure will.

In the evening, I stood at the event microphone and announced the Red Cross needed 2-3 more volunteers to reach their goal for the day. I was going to attend, who was with me? I went back to the vampire bus. (Actually, I am pretty sure it hurt less than an actual vampire bite would.) As I sat and chatted with the gal in charge we not only had a few giggles over some of the questions, but we found out that- I PASSED!! I was able to donate blood! My heart is FINALLY well enough to give this service! Oh, I was thrilled!

After the questions were finished, I went to lie down on the bed, where the needle was (gulp) inserted (not a huge fan of needles) and the blood was taken from me, like a anteater sucking up it's favorite creatures. I was able to donate a full pint in 5 1/2 minutes- better than the average. While I was lying there, squeezing the little stress ball that helps my blood release easier, I had a nice chat with the man who was taking care of me at that point. He is a big, burly, teddy bear of a man. He wears a dark purple stethoscope and recently bought himself a dark purple, metallic Harley!! Who wouldn't when it is your favorite color? I would LOVE to see that bike!!

As the vampires no longer ask what type of blood one has, I offered the information. "O negative with an Rh negative factor," is what I told them. "They are going to LOVE you!" was the response. (From my understanding, my type of blood is the rarest, and it is also universal, so that makes me a prime donor.) We finished up my transfusion.... I mean donation... and I went on my way. Amazingly enough, I was not even dizzy. I was allergic to all the foods they offered, so I just went back to my table at the fair to eat my sun-warmed strawberries. Yum! (Not really.)

The vampires were superb. I shared with them a little of WHY I was SO emotional over donating blood. They were happy I was there, as was I.

A few of us Blood Heroes. I am on the far right.

It was easy, peasy to donate. The hardest part was answering the questions, as some of them made me giggle... a lot! If you are in the kind of health needed to donate, I suggest you do it! You get to be a Blood Hero because the blood you donate will absolutely save a life one day!  To the vampires who cared, thank you. Your caring about my healthy heart made me feel loved.

My name is Jenny McKinney. I can donate blood again... and vampires care enough to have chocolate cookies for you! Chocolate! Yum!!

Still Learning

As I think about growing up in Mesa, Arizona, I recall how I spent my summer days outside. 122 degrees or not, you could find me in the neighborhood swimming pool, climbing trees, or running barefoot through the field, even racing barefoot down the blacktop. Our family struggled financially, but we had a home to live in. We had our set of struggles for sure, but in looking back, I can remember many carefree days. We had no idea my heart would eventually be a ticking time bomb from a CHD that would lie dormant until I was an adult. I sometimes have wondered how much the strep infections I had lead the the weakening of my heart. Curiously, my heart now beats strong, with numerous days ahead- too many to count.

There are days when it is hard for me to believe that I am approaching the one year anniversary of my successful heart surgery. Where has the time gone? I am finally coming out of the struggle I've had of of not knowing which direction to take my life. Although it has taken a long time, I finally understand why God chose to spare me. I have a mission I have not yet completed. I have lives to touch, lessons to learn, others to assist. I cannot yet be as the angels when God still needs me here. The storms still rage around me, but there is peace in knowing where I am going. As long as I put my trust in God, He will guide me with His loving hand. Also, I am getting a bit excited, because I am going to be celebrating my one year heartiversary in a big way! I look forward to the new memories with a happy, healthy heart.

My own experiences are bringing me to people that have changed me life for good, people I would have not met otherwise. I have made some new friends who live just down the sidewalk from me. They have a brand new baby, just a month old. When he went in for his one week check-up, they learned he has a condition called Total Anomalous Pulmonary Venous Return (TAPVR).  He was life-flighted from the doctors office to the Primary Children's Hospital (PCH) where they have one of the best cardiac heart teams in the country, if not the world. There, he had to have emergency open heart surgery (OHS) in order to live. Last night, they had to take their baby back to the hospital last night to admit him for an infection. During that time, I had the blessing of watching their eldest, barely two years old. I was in awe of the faith the parents of these baby boys carry. They have full trust in the doctors and in God that whatever is to come is supposed to be. Some may say they are naive. I say their faith is refreshing!

Late last night, after the parents came to pick up their eldest son, I sat down to research TAPVR. I found this website which is great at helping one learn about the various defects. During my research, I learned that there are 49 Congenital Heart Defects (CHD). FORTY-NINE!!! Do you know that 1 in 100 children are born with a CHD? My defect, ARVD, is classified under Electrophysiology Defects. Although I am no longer struggling with mine, I still read up on it, so I understand it better. This information may be critical in months and years to come.

It is not until now I have publicly shared some information. Until now, I was hoping there is nothing to tell. Yet, I feel compelled to share it, for there may be another mother who is enduring the same emotional turmoil that this mother's heart is feeling. There is a 50/50 chance my children will have my genetic condition. So far, my two eldest have not shown any signs. My third, however, is showing nearly every one. Curiosity strikes my spirit strongly as my husband and I prepare for our youngest son to see the cardiologist. On August 6th, we will take him to see a leading cardiologist at PCH. From there, it will be determined what tests are necessary, if any, to learn of the functions of his heart. As a mother and a CHD survivor, I know, I know there is something not quite right. I see it when he wakes up from a deep sleep and his heart is racing at more than 130 BPM. I see it when he walks down the hall, suddenly becoming super fatigued. I see it when we are out hiking together and I check his heart rate, where it has drastically dropped to the low 60's. Something is not quite right. I was hoping it was years before we would have to face this again, if ever. The time has come much sooner than I anticipated, especially only learning a year ago that one or more of my children may dace the same future as I. I just pray for strength on his behalf that whatever we are facing, he will survive.... that we will survive.

I know it is God's will in whatever is to come. He created B-Man's heart and mind. God knew what He was doing when He wired B-Man's brain in such a way that modern doctors would tell us he has autism. This same Creator also knew what He was doing when He put this exact heart in B-Man's body. It is a perfect heart- perfect for whatever lessons B needs to learn in this life and what God needs us to learn as well. God is perfect in His knowledge, even if we are not. Peace does not evade me, but instead permeates my soul. God is with us, walking this road- no matter where it leads.

My name is Jenny McKinney. I am a heart warrior, and possibly a heart mom. Instead of chocolate, I think I shall return to bed.

Things Are Different Now

I am 37 years old and my life has just begun. Many days, I feel I am infantile in my learning process, which is rightly so; this life is all about gaining wisdom and knowledge but it's length is but the blink of an eye in the eternal perspective. I like to think that my 20's were my growing up years and my 30's are my years to gain wisdom. What will my 40's hold?

Things are different now. It has only been in the past few weeks that I have begun to realize how much I have learned since my heart was restored 10 months ago. Last night, as my mother-in-law was visiting from out of state and, along with her mother, we discussed some thoughts on mothering and parenting, I could almost hear what these wonderful ladies were thinking, "Jenny finally gets it! She has finally grown up." I nearly called them out on thinking those things, but decided to just leave it alone. One thing I have noticed since my heart was declared strong and healthy is how much I see things differently now... how much more life means to me.

Things are different now. The struggle of being a healthy mom has been more difficult than I thought it would be. As I have shared here, I have walked a road of feeling lost in who I am. It was almost easy when I was dying, because I knew what I had to get done. Yet... why not do those things still? I want to help my children to their chores. I want to homeschool! I want to teach them right from wrong! Everyday, I look at my children and husband with this deep, abiding love. in awe, I wonder that if I can love them so deeply, how much greater is the love of our Savior and Father in Heaven for these souls. How can a love be greater than that of a mother? If it is the love of our Creators, then it is so.

Things are different now. I still do not have my energy restored to 100% capacity. That will still take some time. What I do have is my ability to love reaching beyond depths I never imagined. What if, when my heart was fixed, God placed in it more love than I could experience before? Perhaps in my physical healing, a spiritual healing took place, one where the Atonement was truly procured by a soul, my soul, that I did not even realize was aching.

Things are different now. All I want to do is love, serve, create. Before, I looked for reasons to be angry, to feed an unhappiness that resulted from poor self-esteem I did not even realize I struggled with. Now, I desire to keep this smile on my face all the time. Do I lose my temper? Yep! Now I am quicker to apologize and ask forgiveness. Do I make mistakes? All the time! Yet, my desire to change and be better comes from opening my heart and receiving the Grace of God rather than "just doing the right thing".

Things are different now. Now I am willing to learn from my mistakes; I am willing to feel the Love and Grace of God; I am willing to allow my heart to love in ways it would not have before. The more I love, the more I serve, the more I count my blessings, the more my heart loves, grows, functions in ways unknown to Man.

Yes, things are different now and for this, I am grateful.

My name is Jenny McKinney. Things are different. I am different .... and I already had chocolate today.

A Letter of Thanks

(Written 6/17/2014)

To my Heavenly Father-
Thank You for the beauty of my life. Today, I was able to bring little children into my home and give them so much love. In return, I received a bosom full of joy. As little children are so tender to You, I rejoice that I was able to see them through Your eyes.

Thank You for the home that we call ours, for however long we are here. It may not be a mansion, but it is our palace, as I work hard to make it as such. I am grateful for the creativity I have been blessed with to make it welcoming for all those who enter here.

Thank You for the food we have on our table. We often eat humble meals, but we have more than most in this world. How can I complain?

Thank you for the love that fills our home each day. Our children are healthy and happy. Our marriage is strong. All these things are because we have done as You ask and center our lived around Your Son, Jesus Christ, and put others first whenever possible. This has brought us joy.

Thank You for the friends that surround us. We may not go to parties each week. We may not be able to take lavish vacations with our neighbors, but we know where we can turn if a need arises. We know in whom we can put our trust.

Thank You for helping us find opportunities to serve. Whether it be at church, in our community, or in our home, our hearts grow each time we give of ourselves freely. In this, we can rejoice.

Most of all, for me, thank You for the gift of my life, in which has been spared. You did not just mend my heart, You healed it. Now, I may continue to live life to the fullest and love to my greatest capacity.

Your loving daughter,
Jenny


(Now.... where can I go find some chocolate?)

Shaky Knees, Strong Heart

Two weeks ago, I had a sudden pain in my left knee- one that would not leave, no matter what I did. Concerned that I pinched a nerve like I had in my other knee years ago, I did my best to rest it. I put a knee brace on, occasionally taking it off to ice it. After a couple of days of this interruption in my life, I finally borrowed a set of crutches. I just could not put pressure directly on it. Should I have gone to a doctor? Maybe. Did I? No. A good friend brought me over some all-natural pain patches. Those I was willing try. As you may know by now, I am not a fan of medication, so the all-natural Class 1 Medical Device patches appealed to me. They brought enough relief that I was able to be off the crutches by the next day and I thought I was good to go. (I am grateful to my family for not making goat noises while I painfully gimped around the house.)

Two days ago, I went for a walk- a little over a mile. Everything was fine. That evening, I pushed things a bit and went for a... gulp... jog. Not my brightest moment, that was for sure. I barely covered half a mile when the pain decided to come back full force. Sigh.

Yesterday, things were feeling rather fine until my dog decided to walk next to me and knock me off balance. When I tried to catch myself from falling, I stepped down hard on my left leg, causing the pain to shoot through my knee like a lightening bolt zaps an evergreen. Thankfully, my hubby caught me before I could totally fall to the ground.

As I have been feeling things out for my future goal of running a marathon, my kind husband pointed out that with my knee struggles (that I have had problems with since my childhood) perhaps I should plan on walking the marathon, instead of running it. I told him pointedly that walking it would take too long. He patiently replied that running it may be putting too much pressure on my knee and I am risking serious damage to it. I wondered how long it would take to walk a marathon.

On Sunday morning, I was studying what members of my Church call "The Lord's Law of Health" or "The Word of Wisdom." Especially since my diagnosis and since my one year "heartiversary" is approaching, I have been particularly interested in strengthening my newly functioning heart. In a sacred blessing I was once given, I was promised that if I live the Lord's Law of Health, my body would function properly and I would be able to overcome the illnesses and sickness that I would experience in this life. This makes me rejoice! With a little time and a little more recovery, I know my heart can withstand the marathon. What about my knees, though? They are rather shaky these days!

I have decided to trust in the blessings of God and move forward with this marathon goal. I am going to research out knee-strengthening exercises and focus on making them strong. Once I do that, I know I can do this! It will not be this year as I originally planned, as I am learning to slow down and proceed with caution, but I will accomplish my goal! I may have shaky knees now, but my heart is strong and like the Lord provided a way for my heart to be healed, so He shall with my knees.

My name is Jenny McKinney. My heart is strong and I really want some chocolate! (It's breakfast time. I wonder if I can find some around here.)

Living for the Future

Note: The following is a sacred experience that is precious to me, but I feel prompted to share this day. Please do not comment anything negative or mocking to my personal beliefs.

It has been quite a journey- finding my place after my heart was mended. More than I ever imagined, I have struggled in ways I was not prepared for. Yesterday brought a sweet experience to this hurting soul. In my religion, we believe in the laying on of hands, as Christ did in the Bible. It was a few months ago that my bishop (the minister of our local congregation) used this ordinance to relay a beautiful message and blessing from my Heavenly Father. I felt so much peace and knew that my life had been spared for a purpose. Yet, I still struggled. My faith was not great enough to fully accept those promises in that moment. I still battled this unseen force that seem to want me to be lost in a world of darkness. Yesterday, that changed.

I attended an ordinance session at our area temple seeking peace as my beloved aunt was preparing to pass away to the heavens, and searching for that strength that I knew I had somewhere inside. After having a beautiful experience involving my aunt's passing, I was then given a breath of renewed hope and strength for my own mortal journey. I did not realize how much the darkness had been plaguing me until I stepped into that sacred House of God and left the cares of the world behind. It was there that this message of love was shared- and finally accepted. In one moment, I felt the Spirit whisper to me, "Your life has been spared for a reason. Stop being afraid to live!"

So long had I been planning to leave this life that for all these months post-op I have been afraid to live again. No more! From this moment on, the darkness will no longer take hold of me! I will embrace life! I will seize the day! I will look for opportunities to teach others about CHD's, to share my gifts of music and service and most of all, to love my family and make memories with them as often as I can! THIS is the life I have been given to live! THIS is the time I have been given to live it!  THIS is the day the Lord has made and I will rejoice in this day and be glad of it! (See Psalm 118:24)

My name is Jenny McKinney. I am grateful my life that I shall live and... I really do not want any
chocolate this morning. (I had some last night, though!) :)

That Weird Thing Again....

Dear God: 

I have not posted on here in quite some time. There is a reason for that... my heart is healthy!

Sometimes, I feel my heart doing that "weird thing again," as I tell DH. When he asks what it's doing, I smile and say, "Beating normally." It is still so foreign to me because for years all I could feel was the skipped heart beats, the palpitations, the A-Fib moments. Now, I do not pay attention because it is beating so strong and healthy! Once in a while, in a quiet moment, I really feel that healthy beat and once again, I am in awe of a God who lead the doctors to mending my broken heart. 

In a few days, I will reach my 9-month heart healthy anniversary. Three months from now, I will be hitting my year mark. I never thought I would go a whole year where I would not worry about collapsing, being out of breath just from sitting up, having a heart attack..... dying. Truth be told, I still do worry sometimes. What if this is not as real as I think it is? What if the doctors missed something? What if I relapse? 

Then, I remember that on August 12, 2013, God granted me a miracle. A real miracle!! I had people all over the world fasting and praying for me, for my heart to be whole, and He gave me that!! What does that say about my faith if I doubt? My heart is not just mended, it is WHOLE!!! For that, I am grateful and will celebrate my life everyday! 

Everyday, I am working on taking a few moments to listen to my heartbeat, for when I hear it beating strongly, I know that God is real. 

My name is Jenny McKinney. I am strong, I am whole. No chocolate is necessary to know that!