Joy and Green Hearts

It is a day of overwhelming emotion. I am not sure if I should share, because I might burst into a million little butterflies and rainbows, the news is so great. Here's how it all played out.

Yesterday, as some of you read on my Facebook page, I was at a loss as to what to give my heart surgeon when I saw him today. The man did save my life, after all. How do you repay that? With cookies, of course! What kind of cookies? After an hour of researching options with the ingredients I had on hand, I went with heart-shaped sugar cookies. Appropriate, right? Since our belongings are still in storage for another few days, I am mixing everything by hand.... even the frosting. How my grandmother's did this on a regular basis, I have no idea, because mixing by hand is NOT an easy task. With my rolling pin being packed in the never ending abyss of hidden kitchen items, I thought I would do something fancy with the dough. First, I rolled it out into a log, determined to fashion the dough into a heart shape, then slicing each cookie of, similar to the dough-boy recipes we see on television and in stores. When that failed- tremendously- I decided to pinch off snippets of dough, roll them into balls, then flatten them with my Dollar Tree Cutting board. It is about 5"x8" so smoosh I did! I then took a little plastic knife and trimmed the circle into a heart. Perfect. That should work... or so I thought... until they came out of the oven looking a little... biscuit-like. Ah well! Once the frosting was on it, then it would be fine, right? Um, wrong.

The frosting was also made by hand and with.... dare I say... a shortening base. Now, I am a pretty good "throw it in the bowl and see how yummy it turns out" sort of chef and I am happy to say I can make a pretty great cookie without a recipe. (I did used one for these.) I have made frosting dozens of times and know how to make it so delicious you want to just eat it on a graham cracker, or a spoon. Using shortening for a base? Not so delish. Of course, I put green food coloring in it to represent new life..... and because I was out of red. The frosting tasted ok when I sampled it. The kids did not seem to complain when they had a taste of frosted cookie. However, when I went to sample one to make sure my beautiful, two-hour long cookie making event turned out tastily, I could not believe it! The cookies tasted like.... biscuits with shortening-based frosting on them! GREEN HEARTS? What was I thinking?!?! There was the problem! I messed with the pink hearts. Should not have done that! Needless to say, I decided NOT to give my doc the cookies. If he tasted them, it would have been like I was saying, "Thanks for all you did, but...." instead of saying, "THANK YOU for saving my life!"

(Looks can be deceiving)

After I finally decided on a gift to give him (printed lyrics in a frame and a thank you note), I prepared for the appointment this morning with much prayer and a lot of deep breaths. I have been avoiding it for some time. I admit, I have been a bit afraid of what he would say. When I finally saw him after seeing the MA then PA, things were better than I could have ever imagined.

Dr. B talked about the details of going into my heart. He shared how he went in looking for specific things such as scar tissue where my heart is enlarged, as well as more trouble than the faulty circuit. Instead, what they found was only the faulty circuit! Once that problem was fixed, he of course tested my heart, and it continued to behave in a healthy manner. The ICD was not needed and today he confirmed as far as he can tell, it will never be. He told me, "Your heart is very healthy. It looks great!" He was pleasantly surprised that it is so healthy. Not only that, but I do not have to return of any check-ups, unless I feel something changing down the road, if I feel things reverting to the way they were before this procedure, which we do not expect to happen.

For the first time in 17 years, I have peace about my heart. For the first time in all of these years, I have been told that I am going to be fine, there are no more issues to be concerned with. Your heart is healthy. I never imagined hearing those words! What reason to rejoice!

I did give Dr. B the framed poem and card. I told him that I made cookies, but in order to protect him from their unpleasant nature, I did not bring them, something he laughingly appreciated. I also shared with him how there were people all around the world fasting and praying that day on my behalf and his as well. "Tell them thank you," he said. "We really appreciate the prayers and fasting." As my hubby and I left the room, I gave Dr. B a hug and thanked him again. We shared a mutual smile of relief and joy. We both know his hands were guided that day.

After years of testing, stress, endless prayers, nearly dying multiple times, and finally finding doctors to see this through to the end, today I have been declared "heart healthy." Thank you for your prayers.

My name is Jenny McKinney. I do not like green hearts, Sam-I-Am but I would really love some chocolate!

PS- Just as I finished writing this, one of my boys walked in the room and asked for a cookie. HA!

Relapse

Do you remember way back when I had my surgery? (Ok, it wasn't that long ago!) For the first two weeks, I was doing waaaaay too much. (Now don't give me those looks! I had energy!) Although I found out is was because the energy was from the adrenaline pumped into my body after the procedure, to me it was like I was a squirrel who just drank a double caffeinated mocha latte*. When that ran out, BAM!! I was hit with a fatigue like a Whack-a-Mole victim suddenly getting taken out. Over time, though, I was able to rest a lot and slowly my strength has been returning.... until now.

With our recent move, the stairs that have forced their way into my life, and taking a daily turn at walking our beautiful Australian Shepherd, it is certainly understandable that I am a little run down. However, I went to bed last night with a lot of pain in the region of my lower surgical site and awoke feeling... relapsed.

I am more tired then I have been for weeks and the pain is as if I had the procedure three weeks ago, instead of three months. I do not have the energy to do anything today except get up to get a drink or a quick bite to eat. Perhaps part of it is because I am fighting an infection elsewhere in my body, but I am exhausted. I am back to taking daily naps, and they are usually an hour or more. This is really frustrating to a mother who has three homeschooled children and has finally began to feel more human in a very long time.

Maybe this is a relapse. Maybe it is my body telling me to slow down. I finally am going to my post-op appointment next week, so I can talk to the doctor about it then. (Now, please stop giving me those lecturing mother looks! I'll admit I was avoiding going in, but I finally made the appointment, all right?) I do not know if this is normal for others who have been through this same journey. What I do know is that I am trying to be patient in my healing process. I share this with you to remind you, as well as myself, that sometimes we need to be more patient, loving, and gentle, with ourselves.




*(I actually have no idea what that means because I do not drink coffee.)

My name is Jenny McKinney. I am working on my patience and I really want some chocolate!

Undeniably Blessed

Do not try to convince me otherwise..... I KNOW without a doubt that I am blessed. Three months ago today, I wrote about getting ready to head into surgery. Two days later, I wrote the first part of my heart miracle. Today, I sit here in awe as I realize it was three months ago today that I received my miracle. Three months! How is it that three months ago, I was dying and today, I live?

I have been recapping the events leading up to that day in the hospital where my miracle was granted. What the world could not see was that day after day, I was laying on the couch at my folks house, unable to do anything but rest for hours on end. I would fix meals, if I had a bit of energy, but I usually required a LOT of assistance from my children or husband in order to do so. I remember more than once where my mom came in from work, took one look at me laying there, and her eyes began to swell with tears.
     "What's wrong, Mom?" I would ask her.
     "You are just so.... sick," she would sadly reply.

I supposed I never really saw it, until then. I really was sick. It seemed that once I got the diagnosis back in June, after more than a dozen years of doctors running tests, my body decided it was ok to be sick. It was ok to be in pain, to faint, to have such severe fatigue, I could hardly function most days. That diagnosis validated everything I thought I had been imagining all those years that I pushed through the pain. My heart was enlarged. My circuits were going crazy. My heart was working way too hard to function properly. That diagnosis was permission to rest, because if I did not rest, then I would die.

It had been my life for more than 5 years, I told her. This was "normal" for me. She has been at my father's side for many years with his failing heart. She knows the signs. I was dying. It was hard for some to see, because I would still go to church or other activities. What they did not see is that when I got home, I would collapse for hours afterwards. Sure, I would go grocery shopping for 30 minutes, then I would spend the next three hours recovering from that outing. For the most part, my life came to a halt. My bedtime went from 10pm, to 9 pm, and eventually worked its way down to 6 pm. Often, I would make sure someone was overseeing dinner, climb into my pajamas (if I got out of them that day) then go to bed, falling asleep long before my children dreamed with the angels. I was not allowed to go do anything strenuous, and even walking was only if someone was with me. Once I had my diagnosis, once we were in a place where I had help with my children, it was as if my mind gave permission to my body to really start feeling what was happening. My heart was failing me. It would take a major surgery to keep me alive. Without that surgery, tt would take a miracle to survive at all.

Three months ago, you fasted and prayed for me. Three months ago, the Spirit guided the hands of my heart surgeon. Three months ago, the problem was found, then corrected. Three months ago, the doctors tested my heart to go into cardiac arrest and it did not respond to the drugs- a great sign! Three months ago, I was told (although I have no recollection because I was so drugged up) that my heart was fixed, that I would never have to get the life saving device and that, with time and healing, I would be fine.

How am I able to be simply mortal, yet have this Divine understanding?
God uses us to fulfill His purposes. He has granted me the life I need to share my story, so that I can bring glory to Him. (It is taking all the control I have to not weep while I write this.) I know He is mindful of each of us. I know that my life has been spared for a purpose. He loves me. I am His greatest creation! He loves you. You are His greatest creation!

I do not need to know about the intricacies of how my heart works, because that is what the specialists are for. I just need to know I had a condition that was life-threatening and God, in all of His Glory, guided my team of doctors to correcting the electrical storm that was raging. The storm has been stilled. I am still tired. I am still healing, but I am ALIVE!! 

 My name is Jenny McKinney. I am so blessed. Want some chocolate? 

(Picture is "Peace, Be Still" by Simon Dewey.)

The Facebook Purge (Healing- PART III)

Facebook... ah, the word alone brings up bittersweet thoughts. On one hand, it is so great to know that we can make contact with people all over the world in an instant. On the other hand, it can be a place of damaging drama and addiction.

During an especially dark few days this past month, I wondered about the 889 "friends" I had on my social media page. How many of them had I actually had any form of contact with over the past year? Probably about half. Perhaps a third. Out of those 300-400 or so, how many of them have made an effort to seek me out? To make comments on my status updates, to email me personally? To show somehow that they cared about me? Maybe about 200. So "Why," I asked myself, "do I have that many people on my friends list?" Then, I started categorizing who they were and the reasons I kept them on there.

- Family. They are family, so I am obligated to keep them on my friend's list, right? Even though they have not been on Facebook in the five years I have been friends with them on there; even though we never, ever have had any form of personal communication in years, whether or not through the site; even though in "real life" we have rarely spoken to each other or have even met, for that matter, I am obligated to keep them on there, right?
- Church Acquaintances. We go/went to church together. Even though we have never had any contact at church, or on Facebook; even though they had greatly mistreated me and I am still working on forgiving them; even though I have only heard of their name in the church world, I am obligated to keep them on there, right?
- High School Friends. We went to school together 20+ years ago (am I really old enough to say that?) and we never talked then, so of course we should be Facebook friends now, right?
- Music Fans. Some people heard my music online or at a performance, then sent me a friend request. If they are fans, then they might need to hear the positive messages I strive to share on a regular basis. Maybe they are in the dark and that message is bringing them hope for that day, so I am obligated to keep them on there, right?
- Strangers or Friends of Friends. Yes, there were people on my friends list that I have no idea who they are. Some we lived in the same city so they sent a request. Others saw me comment on a mutual friend's page, so they sent me a request.

So there they were... a bunch of people I did not know or never had any contact with. I knew many of them would not care of I unfriended them, because we never had any contact. So, without much hesitation, I began the Spring Cleaning process. Deep down, I knew that as a public figure of sorts, I may be damaging my fan base, but in that moment, it was about survival and finding my way out of the dark. It was about ridding my life of anything extra, including nameless and faceless people that were just.... there. I began unfriending, then what began as therapeutic turned into unhealthy thoughts.

I began rationalizing the why of what I was doing. I am going to delete her because she only pretends to like me. I know she really doesn't. If she liked me, then she would have made an attempt to talk to me in the past few months. (I never stopped to consider what she might be dealing with in her own life.) Or how about, Sure, they are related, but are they really family? I mean, if they cared, they would have asked about my recovery. They would have expressed some concern about my heart during all of this testing and procedures I had done. They never asked, so they must not care. The most common thought I felt myself having as I was doing my Facebook Purge was that of If I unfriend Person A but keep Person B, then Person A will surely notice and dislike me even more than they already do. They will judge me for keeping Person B and not them. There were also thoughts such as, So what if I am in the public eye? Does that mean it is my responsibility to keep all these so-called "friends" because one of my messages I share might save them that day? Well, yes, Jenny McKinney, actually that responsibility does come with the territory.

Truth be told, even with 889 Facebook friends, and many of them being "real life" friends, I felt very alone. During that struggle of loneliness, I began rejecting people in my life because I felt they did not care. In many ways, I was walking a path of self-created darkness so I did what I knew how to do: I purged my life of what I thought was causing some the darkness..... people who did not care... or did they? When I found out my beloved friend had cancer, I shut her out. I could not deal with it. Oh, I cared alright, cared to the point of grieving so deeply that I did not make contact with her while she struggled through her horrible treatments. I prayed for her continually, and loved her from afar, but I never sent a note, never called, never let her know how much I was cheering for her. My heart ached on her behalf and I knew that if I tried to contact her, I would be a mess and have nothing to offer her. So, I prayed that angels would attend her and somehow she would feel of my love from afar. When her treatments were coming to an end and I finally contacted her, I was so sorrowful that I had not been a better friend. She instantly forgave me and lifted my spirits, because that's the kind of friend she is.

Maybe some of those friends and family who became invisible in my life were doing as I did with Kami... loving me from afar. Praying for me. Cheering me on as they read my blog, or learned of what I was dealing with. I am grateful for that. Truly. Though this process, though, I have learned that one really does recover quicker when they know they are loved.

Now, I recognize some of these thoughts as being unhealthy, but when you are in that darkness, it binds you. Once those unhealthy thoughts find their launching point, they can quickly snowball out of control. Many times, it takes hitting rock bottom before something begins to change. For me, the change began when I find out one of my children was suffering from their own deep, scarring darkness and needed me to love them through it. My behavior was not going to help. I had to change it so I could be their for them. It has taken some serious self-reflection, hours of prayer, scripture study, temple attendance, and getting into the habit (of which I am still developing) of taking a nutritional product (that I took years ago and saw excellent results, but stopped taking for the past several years) to start seeing results. I also spent a lot of time talking through things with my husband and my bishop (pastor) before I began to feel the changes taking place. I finally reached out to you and asked for prayers on my behalf. Then, as I recently shared, the darkness began to lift. All these things came together for my own good. For that, I am truly grateful.

I am doing better. Honestly. I know much of that improvement comes as a result of prayers on my behalf, for which I am humbly grateful. I know there may be days of darkness ahead, but I now know I do not walk alone. I pray that those who have been hurt by my choices will be quick to forgive. I did not set out to hurt anyone. I was just trying to survive. If you want to make contact again, please send me a friend request. My heart is healing and ready to love again.

We are all beloved children of God. He uses us to accomplish His great works. We need to be there for each other, and not be afraid to love one another through the darkness. It is only when the Light breaks through that we can be whole again.

My name is Jenny McKinney. I am healing and... I think I will go have some chocolate... hot chocolate.

Family Dynamics (Healing- PART II)

Like many of you, I come from a family with all sorts of dynamics. We have those who have stayed on the straight and narrow, those who have wandered and are still lost, and those who have left the path, been to the depths of hell, and found their way back, only to bask in the joy that comes from making choices pleasing to God. One thing that I have learned these past few months while living with my folks is that our parents (the ones I was born to that raised eight children) love their children. Now, all eight children may not see it, but I know it to be true. Over the past few months, I have seen my parents cry and grieve for the children who are hurting, and express sorrow for their own choices that may have led to the struggles of their children. They have expressed joy for the positive choices made, and have rejoiced when any of their children have accomplished something good, small or grand. Parents do not feel these emotions without love. Maybe not everyone can see it, but they love the best they know how.

When my family (my, the Hubby and kids) transitioned from Idaho to Utah this summer, my parents offered for us to stay with them while we looked for a place to live. This was going to be a very temporary stay, perhaps a month. We came on a Sunday. I had just finished all the tests in Idaho- the Echo, CT Scan, Cardiac MRI, etc. The only test left was to finish wearing the monitor. The week after we got to Utah is when my doctor called me from Idaho to share with me about the heart condition. It was a few days later I found out that I needed surgery. My parents did not hesitate. "Stay with while you go through your surgery and recovery." Even though the Hubby and I knew it would be tough in that small home with 9 people, I knew it would considerably lighten the load for me as the mother. I would not have to worry about who would oversee my children being fed, getting to bed, who would play "Mom" while Mom was down. The time with my parents definitely had some difficult moments (as being with family usually will), but there was great beauty in seeing my children get to know their grandparents. There was joy each day Gramma brought home stamps for Princess B's collection Gramma got her started on. There was definitely love. Even through the moments of me being frustrated with my brother, or my dad being a bit grumpy over me "nearly burning the house down" (It was one time, Dad!) there was love. There were long talks, laughter, silliness, love. They have loved us in the best way they know how.

That love has stayed with my little family as we have settled into our new lives in our new place. Now and again, I will see Princess B (age 6) sniffle a bit. When I ask her what is wrong, with sad, teary eyes, she answers, "I miss Gramma and Grampa." I remind her that isn't it wonderful we were able to spend that time with them while Mommy got better, so now she knows them well enough to miss them? I asked her what she loves about them. "Well, Gramma does bring me treasures (stamps) and she is kind. And Grampa is pretty funny." I then let her know that it is the memories she has made with them that make her love for them so special. It is healing to my heart to see these memories and love for her grandparents take place in the walls of my home.

Healing comes in all forms. Sometimes it is through service, other times it is relishing in the memories made. Right now, for me, it is in knowing that my parents, with their failing health, love me enough to take on a family of six for 4 1/2 months, so my heart can have a chance to be made whole.

My name is Jenny McKinney. My heart is healing and for once, I really do not want any chocolate.

Part III (final part of this series) coming soon!

The Journey to Healing... PART I

Ah, I love that moment.... that moment when suddenly everything clicks into place. Everything. Some of you know what I am talking about. It is the moment when I see the clouds slightly part above the steeple I am driving by first thing in the morning. That moment when God whispers to my soul, "Are you understanding yet? There is a purpose to everything under heaven. The heartaches, the depression, the surgery, the financial struggles, friendships lost and gained. All things come together to work for your good and My glory when we allow them to." THAT is the moment I am talking about. Today is one of those moments. Let me explain.

A few weeks ago, I finally made a very public admission: I have been struggling. I truly had no idea that I would receive such an outpouring of love. I very much felt near tangible prayers and love begin to pull me out of that dark place. There were notes of love, emails, phone calls- you name it! While I absolutely am grateful for all of those thoughts on my behalf, there are a few comments that especially struck me deeply that I want to share. Positive thoughts truly are a huge part of my healing process, both physically and emotionally.

From my friend, Erin, whom I met through a facebook group, but she became a heart sister very quickly: 
I love you, Jenny! I know you know Heavenly Father loves you. But you have had to be strong through some heavy stuff for a long time. I hope you know you don't need to be "stronger" - you just need support and friendship. You need safe, trusted, loving friends to rally around you over time. I pray for you that you receive that! It will do more than medicine. I hope my words that follow offer some understanding to those in your social circle locally and touch some hearts in your behalf.

After my peripartum cardiomyopathy (PPCM) (pregnancy-related heart failure), even after my heart was no longer enlarged, no longer in chronic heart failure, and the left ventrical function returned to normal, and so on, it took a long, long time for the rest of my body to catch up and heal. Even now, 7 years after diagnosis, my heart is deconditioned. It will take some vigorous exercise and consistency over time to get it stronger and reduce my high heart rate.

Well-meaning people caught up in the busy-ness of their lives don't understand that when your heart takes a hit - your whole body takes a hit. What's more, our emotions are impacted - our bodies, spirits, and emotions are intricately intertwined. That doesn't recover overnight just because the heart start beating normally again. Also, we have endured trauma - and that certainly takes time and sometimes other work or help to recover from.

You're just beginning the path of your recovery, my friend. I've been an admin for a support group for several years for women with PPCM, and I can tell you that your feelings and needs are normal and understandable. I hope you receive the listening ear, the help and support you need. Love you, Jenny. So glad you're reaching out.

From my dear friend, Sandi, who has known me my whole life, and knows me better than most. She is my soul sister in every way. 
You are no longer the girl with the mysterious heart issue. Your identity was wrapped up in that label for so long that you are now struggling with moving forward without that label that you hated but at the same time became a part of you. You will find yourself again. There is beauty all around you. You were afraid of experiencing true joy because you were afraid of losing it. Feel joy. See the beauty now with hope, not fear. I love you.

That love has stayed with me. Your love has stayed with me. I feel my heart getting better. My energy is returning, albeit slower than I would like. And the darkness? While I am sure I will still have bouts of it here and there throughout my life, for now, the darkness I have been experiencing for weeks is simply.... gone!

Love has lifted me to a higher place
God has granted me this love through His grace
It has taken my soul to a place I now know
Your love has helped me be whole

Thank you for your prayers. Thank you for your love.

My name is Jenny McKinney. I am healing and.... I already had chocolate. (It was frosting on a donut!)

Go to: Healing- Part II