Showing posts with label arrhythmia. Show all posts
Showing posts with label arrhythmia. Show all posts

Monday, December 29, 2014

The Truth Shall Set You Free

It has been a quiet time for me on the computer these past few months as my laptop crashed and I do not get on the family computer for extended periods of time. It is so different from my own computer that I find myself not being as appreciative that we even have a nice computer. That gets my wheels turning, though. How often do we have something decent, lovely, useful, etc. and we do not appreciate it, because it is not what we wanted, nor what we planned on having? How often do we begrudge our life's journey because it is not the direction we planned on taking? How often do we allow ourselves to become bitter towards another, even God, because life has not worked out to our specifications? No more for me! It is the end of a year of Conquering Mountains and now onto a year of Renewed Hope.

Each year, I choose a phrase or word, instead of setting a bunch of New Years Resolutions I will never complete. As 2014 is winding down, and I look back, I see that I truly did Conquer Mountains. I look forward to 2015 with Renewed Hope- hope in my body getting stronger, hope in strengthening friendships and mending relationships, hope in being more proactive in my music, hope in other human beings also trying to do good in this world. The goals I set will be throughout the year with the theme "Renewed Hope" and that theme will be my motivation for becoming better.


Ready to run.... or walk
Back in September, I ran a 5K. I know... I did not write about it here, but lucky you, I will include pictures today. Last night, I had a long, continuous dream about my family spending time with my heart surgeon's family. In this dream, Jared (the first name of my doc) and I had a lengthy conversation about how my progress has been, and how difficult it has been on my emotions that family members do not believe in all I went through. He shared with me some insight that helped me feel peace this morning. He told me that I know what I went through, my husband and children know what I went through, he- my heart surgeon- knows what I went through, but most important, God knows what I went through. The rest does not matter, he shared. They choose to believe what they choose to believe. He said to me, "Jenny, I was inside your heart. I literally know what is in there! Your heart was damaged but God granted you a miracle and He healed it! That is what you need to share!" So, share I will!

I share this to all who care to read. I share this for those that might need a reminder that God loves you and that He is real. My heart was broken, and now it is healed. God did this for me!

When I was 20 years old and experiencing difficulties with my first pregnancy, I was diagnosed with arrhythmia. For the next 14 years, I was in and out of hospitals and doctors offices trying to find out why it was so bad I would pass out without notice, why it was so bad that I would go into A-Fib and V-Tac. What was causing this?! For two years, I was tired so I stopped going in for tests. All I was ever told was that something was wrong and they (the doctors) could not figure out what it was. Finally, with some gentle pushing, my loved ones convinced me to go in one more time to see a new doctor. My darling nurse friend went with me, explaining from a medical point of view how she had seen me pass out time and time again with no warning. She shared insight I was not even aware my body was doing! That was in early 2013.

Just finished!
In May 2013, I went through my last set of heart tests. I was lead to a heart specialist that told me she would keep digging until she found answers. (Side note: That first time I met her my heart rate was at 53 bpm and my blood pressure was about 84/42. She said I should not have been so conscious and talking. I told her it was the norm for me. Again- God did that! He kept me alive!) In June, our family moved to Utah from Idaho while I was still wearing my 30-day halter monitor. We moved because my husband and I had it confirmed to us through the Holy Ghost that I was going to die and we needed to be near family to help with the kids once I was gone.

Dr. L called me the following week with results. She had sought out a second opinion before she called me. It was... really bad and I needed heart surgery to save my life. I was diagnosed with a CHD- which means I was born with this condition. Wow! I was sent in to another specialist in Salt Lake for a third opinion, in which he agreed. "You should not even be alive," Dr. B told me. "You are at high risk for Sudden Cardiac Death. I cannot believe you have not had a massive heart attack or have dropped dead yet. You need surgery asap." Without it, I would die.

I was put on strict bed rest for the next five weeks. If my heart rate got up to 120, it would kill me. The day before my surgery was scheduled, I woke up to it racing at 110 bpm. For me, that was life-threatening. It would not have taken much more to send me into cardiac arrest.

Several days prior to surgery I started taking a micro-nutrient that actually changes DNA. I had amazing results.

On August 12, 2013 I went in for major heart surgery. That day, friends from all over the world were
My heart family
fasting for me and my doctors, many souls were praying as well. I had been given a priesthood blessing just before I went to the hospital. Hours later, when I finally went under the knife, a miracle had taken place. All of the problems that had been showing up on the tests were almost non-existent. My heart had almost completely been healed. The medical team mapped out my entire heart and was puzzled because it simply... was not there. All of the detailed, life-threatening issues were mostly... gone. I came out of surgery with a minor procedure instead of a major surgery. I was told I am going to be just fine.

Behind closed doors, my doctor and I say "miracle" but on paper, my diagnosis was actually changed. It truly is a miracle!!

I am healthy. I am starting to get my energy back, and I look forward to living out a long, full life. God did this. He granted my family a miracle. There is no other way to explain it. He worked through fasting, prayer, blessings, and proper nutrition to heal my body. This, I can never deny, for if I do, I would be denying the truth of my God. That, I can never do.

With this post comes the end of this blog. My life's journey has just begun and my heart is healthy and happy. I will spend the new year focusing on sharing my story (in depth) along with my music and doing motivational speaking. Thank you for sharing in this journey with me. It has been a thrill. You are lovely and good and oh, so LOVED by God!! May He always keep you in His ever-lasting care.

My name is Jenny McKinney. I am a walking miracle. I am a survivor. Like always.... I really want some chocolate.

Wednesday, August 6, 2014

Shake Your Booty


A couple of years ago, I was lying in bed, having a terrible time with my heart. My little girl - then 5 - cuddled with me and wanted to understand what it was doing. Saying a quick prayer that I would know how to answer her without scaring her, her young brain and old soul would grasp things I could not even comprehend yet. Inspired, I walked, ran, danced, my fingers along the blanket and explained, "Sometimes my heart walks; sometimes it runs, sometimes it dances. Sometimes it tries to do all at the same time. Sometimes when it is supposed to be walking it runs, then dances, then walks. Sometimes when it is supposed to run, it walks dances, stops to shake its booty, then walks again, shakes its booty, dances, jumps, flips, shakes its booty, because my heart cannot make up its mind!" By that point we were laughing so hard, tears were coming down our cheeks. It especially lifted me spirits when Princess B got up and pretended to be my heart, acting out what my hand just did. Talk about adorable! How grateful I am that she was able to join our family before my heart prevented me from bringing her into this world.

We had a lot of fun being silly as we talked about all the things my heart was trying to do. This video would have been most helpful to teach her about heart rhythms. It is not meant to offend, but hopefully be a tool and bring a little smile to your face as these doctors use their bodies to explain a few rhythms.

Life is so serious so much of the time. Yet often, in the midst of the trials, there is so much joy to be found, if only we are open to receiving it. I hope the video brings you a little joy.

My name is Jenny McKinney. I used to have a funny heart rhythm. Now I just have funny cravings for chocolate.

Thursday, August 22, 2013

Liar, Liar- are Your Pants on Fire?

Are you the kind of person that sees a miracle for what it is or are you one who only believes if it is convenient for you?  I am in the first category.  I have seen too many to deny them, whether they are my own or belong to someone else.

I am writing this post for a few reasons. 
1- I want you to know that I still have very real struggles in my life.
2- So people will realize what happened to me was not a life-fixer, but a life-saver
3- To help you see to not waste your time on the people who create toxicity in your life.  Celebrate life with those who support you, believe you (and the doctors) and believe in you.  It is they that truly matter.

The heart struggles are still very real in that it has only been 10 days since the doctors saved my life.  I am still sore.  I am still bruised.  I am still tired.  Everyday, I get better and better and I know one day, I will be completely whole again.  I look forward to that day.  I look forward to everyday, for that matter. 

You have heard my heart story, but there is more to it.  Without going into great detail, I will say this past week, I was accused of making up my heart condition.  The accusation came from someone I used to be very close to, but due circumstances in our late teens, that tie had to be broken.  We only recently made contact again and have worked on mending our relationship.  Now, I have chosen to severe those ties again.  This is not because I cannot forgive.  It is because I will not stand to be called a liar.  Because I was heart healthy in my youth, it was assumed I always have been.  Obviously this is not true.  ARVD is real.  I had it.  I could show all the medical records and hospital bills from the past 16 years, but really, what good will that do when I am not believed anyway? 


It reminds me of stories in the scriptures when people asked Jesus to prove He was God.  They would take the attitude of, "Prove it to me and I will believe you."  That is not faith, folks.  You might as well say He is a liar.  He knows who He is and if someone chooses to not believe Him, that is their problem and not His.  This is how I feel.  I cannot make everyone believe that I am truthful in my story, but I am.  I have a dozen or more doctors and hundreds of people who have witnessed the heart struggles I've had- the arrhythmia, the dizzy spells, the passing out.  I was told from early on not to have children, or I could die, although the docs did not know exactly why.  Now we do.  Do you want to be the one to convince my children that their mom has faked her illness their whole lives?  I did not think so. 

I speak the truth.  My heart was broken.  Now it is fixed.  What the doctors were able to do (combined with the other two factors- I call it the Triple Threat)  did not fix my life, but it definitely saved it.  I still have financial struggles with my hubby.  I still have a boy with Asperger's and ADHD.  I still have a little girl who desperately wants her own room again.  I still am living with family and not yet in our own home.  I still have bills to pay.  I still have people who do not like me.  I still make mistakes.  But.... my heart does not skip beats all day long.  I no longer pass out.  I am able to drive again.  I am able to exercise again.  My heart can race and I will not die from it. 

Dr. B and his team saved me.  I. Am. Alive. 

It is all right to let go of those who only bring you down.  You are not here to please them.  You are here to reach your divine potential.  So celebrate!  Go out and find a friend that lifts you up and helps you laugh!  Sing while in the shower!  Dance in the rain with your kids!  Fill your life with joy, happiness and light!!  Those who can bring these feelings into your life are the ones you want to continue on with.  Keep smiling and always remember who you are. 

I took several pictures tonight- ones that would prove I actually did get a series of tests ran (again) and as a result of the findings I did end up getting a heart procedure in the hospital.  I wanted to "prove" something in the off chance that the non-believers read this entry.  I have decided, however, that it will do no good.  It is a battle I choose to not fight.  My life is fully blessed with people who love me, enrich my soul and most of all.... who believe me.  For me, that is enough. 

My name is Jenny McKinney.  My pants are not on fire and I really want some chocolate.

Monday, August 19, 2013

It Takes Time

"It takes time to recuperate."  This is a phrase I have been reminded of daily for the past week.  Today marks the one week anniversary of my procedure.  I truly thought I would be more recovered by now.  Yesterday, I made dinner for my family.  Today, I went shopping for about three hours and.... it just about did me in.  My heart has been racing and just an hour ago it was racing so badly I would have been dead, had I not gotten the procedure done.  A little concerned, I began doing research on post-ablation symptoms.  Once again, I have learned something new.

First, I read the list of risks in getting the procedure done.  Of course, the risk was much greater had I not (as in cardiac arrest) but let's say I am grateful that I did not read the list prior to going in.  Here is what I read:
Catheter ablation is considered safe.
It has some serious risks, but they are rare. They include:
  • Stroke.
  • Heart attack.
  • Puncture of the heart.
  • Need for emergency heart surgery.
  • Problems with the pulmonary vein.
  • A leaking blood vessel.
  • Nerve damage that causes paralysis of the diaphragm.
  • Pericarditis.
  • Cardiac tamponade.
  • Atrio-esophageal fistula. In this life-threatening condition, a hole forms between the heart's upper chamber and the esophagus.
  • Bleeding.
  • New heart rhythm problems.
  • Death (very rare). 
WOWZAH!!  See why I am grateful I did not read it first?  Oy!!  Talk about scary.  I always laugh when they say "death" then add that is is very rare.  Hehe.  Well, good to know I only might die!! 

(It kind of reminds me when I have volunteered at the prisons in Boise, ID the past three years with my women's choir.  With the paperwork we sign, it has a list of guidelines.  The first is something along the lines of: I understand that by going into the prison, I am putting myself at risk for injury or being held hostage.  Haha!  No worries there!)

Back to what I have learned.  It is very normal, actually, to still feel like you are going into tachycardia, then it mellows off after a few minutes.  This is as a result of the adrenaline that was pumped into my body while I was under anesthesia.  My body is just trying to work it out of my system.  Weakness and pain around the heart is normal as well.  "Jenny!  They were inside your heart, burning it!  Of course it is going to hurt!"  This is what I have to keep reminding myself.... or my mother and hubby will.  Haha!  I just want to be 100% again.  I want it to be two months from now where my heart is back to  finally working how it should.  Patience.  I just need patience.  Haha!!  It takes time and I have time, so I will take it. 

The best advice I read from one person who has been through this is, "completely normal - your heart's been through trauma and it may take some time to heal - some of us depending on what was done; can take up to 6 months for it to completely heal and the full effects of an ablation to work
take it easy and let yourself heal and try not to be too anxious"

Oh.... take it easy??  Let myself heal?  Sigh.  All right.  I guess I will. 

My name is Jenny and I will heal.  I really do not want any chocolate..... because I just had some. 


This was taken the week of my diagnosis in June.  I had to wear a lot of makeup to even feel confident because I was so ill.  Notice the sallow look to my skin.



This was taken today. I have a new hair style, I feel confident wearing a lot less makeup and I am able to even keep my eyes open in the sun because I am feeling so much better!  Good health, here I come!  (By the way, that is my cute boy- age 14- in the background.)